Thursday, 7 January 2021

Apalling

A few too many enjoying the cloudless blue for my tastes this afternoon...but I'm grateful I knew this as I was one of them! I give thanks for finding a fairly isolated spot to enjoy the winter sun on the lower part of my face...after finding more get up and go than I had had in the morning when the prospect of oncology phone triage loomed over me like a pall. 

I've been grateful for feeling a lot more myself the last few days, though still easily tired, but the thought that I'd 'pass' my blood tests and have immunotherapy after dialysis tomorrow and feel pants again really didn't appeal. I gave thanks the renal consultant had requested it was the cancer consultant who talked to me this time (rather than one of her minions) due to the ongoing saga of the nasty skin condition that her minions repeatedly dismissed. Also that said specialist read the electronic sheaf of notes I've garnered over the last six weeks before she called, so understood a) that I'd been through quite a lot and b) that dermatology were playing very hard to get. She advised that although my bloods were good enough for treatment, they were poor enough to consult me on my opinion as to how welcome it would be, especially as the drug did seem to cause a flare up of the horrid spots even if it's not actually causing them. I was very grateful and relieved thus together we came to an agreement I'd have my scheduled scan next week first and see how treated my cancerous bits were looking before carrying on the week after all being well(ish). I give thanks though this may seem a little grim to you readers, to me it makes much sense. Grateful though I am for all the many interventions that the NHS provide for my ongoing wellbeing - from Covid tests to surgery - at point of contact my body and mind struggle to perceive them as actually being of benefit, and the prospect of a week or two continuing (with a little luck and good management!) to feel fairly fine did my spirits a great deal of benefit indeed! 

I give thanks for some pottering with tiles, a long deep bath with a Booker book, and something easy cooking for my tea. Oh and for Julie popping in after her vaccination to do a couple of tall jobs for me including fixing a curtain back on its hook to help keep out what might be seasonable but feels rather unreasonable cold... 


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